Showing posts with label jounalism. Show all posts
Showing posts with label jounalism. Show all posts

Thursday, 8 September 2016

PRESS RELEASE - APPG Campaign Launch

United Patients Alliance Press Release

Embargo: 00:01hrs Tuesday 13th September 2016

Patients Welcome MPs Call to Legalise Medical Cannabis

The United Patients Alliance (UPA) has welcomed the findings of a major Parliamentary report published today that access to medical cannabis should be legalised as a ‘landmark moment’ for the estimated 1 million people in Britain that take cannabis primarily for medical reasons.  The report was issued by the All Party Parliamentary Group (APPG) for Drug Policy Reform following their seven month inquiry, along with the results of a worldwide review of evidence and patient survey, commissioned by them 

Jon Liebling, political director of UPA said, ‘The findings of this report, and the review of evidence from around the world published alongside it, together with our patient survey is a landmark moment in our campaign to advance access to medical cannabis. Working alongside the www.endourpain.org campaign we have long argued that people taking cannabis for medical reasons are patients, not criminals. We urge the UK government to take heed of this report and act.  Today’s news blows the government’s view that cannabis has ‘no medical value’ out of the water.  The government needs to follow the lead of the growing number of countries, including 13 in the EU along with 25 US States that are seeing this issue for what it is – a matter of compassion and social and medical justice with solid evidence to support it’.

The APPG’s members include over 100 Peers and MPs, co-chaired by Baroness Molly Meacher and Caroline Lucas MP
.

Their inquiry stretched over 7 months.  The APPG also commissioned the most in-depth review of the medical and scientific evidence of cannabis’ efficacy for many conditions and symptoms, including mental health, ever undertaken. This review of evidence was researched and produced by one of the UKs top Consultant Neurologists, Professor Mike Barnes. This report should be seen as the most authoritative and up-to-date document on this subject, removing any doubt about cannabis’ therapeutic benefits for many conditions:  https://www.youtube.com/watch?v=c6-snQ_RW74

United Patients Alliance along with some of our patients gave evidence at a number of the APPG hearings and were tasked with running, administering and analysing a 600+ cohort Medical Cannabis Patient Survey comparing their experiences of prescription medications versus cannabis, along with preferred methods of consumption, strengths, sourcing and many other fascinating statistics. The results support both Mike Barnes’ report and the APPG’s campaign and will be addressing question such as:

How do you source cannabis? (street/grow/etc...)
What type is best for you (High THC > Low CBD, choice, etc......)
What form of cannabis (Herbal, Edible, Tincture, Oil)
How do you ingest (Smoke, w/wo tobacco, vaping, eat, etc..)
What conditions do you consume it for?
How effective is cannabis vs prescrition drugs?
Description and Severity of side-effects
How long have you had your condition? How long have you been consuming cannabis?
Have you talked to your doctor about cannabis? How did they respond?

In addition there are a few interesting and significant gender differences in terms of conditions, effectiveness, side-effects, etc..


No10 Downing Street
The public campaign #EndOurPain, which has been active for only a few months and has over 19000 signatories, 29 MPs, 12 Peers, 4 celebrities (Richard Branson, Joanna Lumley, Russell Brand and Alistair Campbell) along with a practising UK GP and Consultant Neurologist will present its aims and progress to No10 Downing Street alongside this launch - http://www.endourpain.org/supporters/  Copies of both the APPG report and the review of evidence can be downloaded from the www.endourpain.org from 00:01 Tuesday 13th September 2016

ENDS


Editors notes:

Contact Details:
Jon Liebling | Political Director - United Patients Alliance
E: jon@liebling.co.uk M: 07921589237

Clark French | Founder and Director - United Patients Alliance
E: as.the.sun.sets@hotmail.co.uk M: 07773 690488

Please use our Website Page link in any publications: http://www.upalliance.org/
(New website launched on 13th Sept)

--------------------------------------------------------------------------------------
Introducing United Patients Alliance
The United Patients Alliance are a support and campaigning community for 1000s or medical cannabis patients in the UK who suffer from a range of conditions including; Cancer, Multiple Sclerosis, Fibromyalgia, Crohn’s, Anxiety, Depression, AIDS, Rheumatoid Arthritis, ME, PTSD, Epilepsy, Chronic and Neuropathic Pain, all of whom have found that various types and strengths of cannabis consumed in a variety of ways has proven to be a more effective medicine than their legal and prescribed alternatives in improving their lives, reducing side effects and treating their symptoms. These patients are forced to either live in unnecessary discomfort and pain or risk dealing with criminals for their medicine and a criminal record for growing it or consuming it.


We launched in June 2014 with the support of Caroline Lucas MP and Professor David Nutt and have since gained the direct support of a number of other ministers and politicians. We run Patient Perspective and Cannabis College events around the UK to give patients a forum for telling their stories and to help inform the public of the proven medical benefits whilst dispelling the myths and half-truths about its harms. We estimate that there are about 1m active and current medical cannabis consumers who would immediately benefit from a change in this dreadful situation. In terms of genuine information on medical cannabis and how best to consume it, we are the UK’s experts on cannabis as a medicine.

Political Director of United Patients Alliance, Jon Liebling asks "What compassionate society would allow the criminalisation of patients for consuming something with their doctors blessing that helps them manage and treat their illnesses and improves their lives?"

Founder and Director of United Patients Alliance and Multiple Sclerosis patient Clark French says:
"Cannabis is medicine for thousands of UK patients suffering from chronic conditions, it is both cruel and callous to seek to arrest someone for consuming something which makes them feel better, we demand the government listens and changes the law to reflect the science and allow legal access to cannabis for all UK citizens who wish to benefit from cannabis' therapeutic potential"


Quotes from United Patients Alliance Patients:

Alex Fraser – Crohn’s Patient
"I was diagnosed with Crohn's Disease at 19. I cannot be prescribed any traditional painkillers for my chronic pain. Cannabis is my only medicine, it's the only thing that's ever worked. It eases my pain, gives me an appetite, helps me sleep and reduces my nausea. Regular use reduces all of my symptoms to the point where it enables me to work. Without cannabis, my life would barely be worth living"

Faye Jones - Rheumatoid Arthritis Patient
"I was diagnosed with Rheumatoid Arthritis at the age of 27 and rely on cannabis for pain relief, and to combat the side effects of prescribed treatments for my condition, that would otherwise prevent me from staying in full time employment."

Jake Barrow - Chronic and Neuropathic Pain Patient

"Patients in the UK need access to medical cannabis immediately. To expect anyone to cope or even survive on heavy opiate based medications for their entire lives shows how both cruel and inhumane political ideology can be. We need to remove the stigma from Medical Cannabis use"

APPG Medicinal Cannabis Initiative


Short Inquiry into the case for changing the categorisation of cannabis for medicinal purposes from Schedule 1 to a more appropriate Schedule”

On September 13th, the All-Party Parliamentary Group (APPG) for Drug Policy Reform published its report and recommendations following its inquiry and presented all the evidence to No 10 Downing Street along with United Patients Alliance and #EndOurPain

From the left: Frank Warburton (APPG), Jon Liebling, Clark French (UPA), Prof Mike Barnes, Peter Carroll (#EndOurPain), Baroness Molly Meacher

The APPG has over 100 MPs and Peers as its members and is Co-Chaired by Caroline Lucas MP and crossbench peer Baroness Molly Meacher.
To find out more visit the APPG Website






Molly attended our Patient Perspective event in London last year and was “deeply moved” by what she heard. She told us on the night, “I had no idea it had such a broad range of benefits. We have to do something about this!”


In the first of many meetings with Molly and her team we successfully argued that “a more appropriate schedule” would be better than “to Schedule 2” reflecting the fact that GW Pharmaceuticals full plant extract medicine Sativex is in Schedule 4 and as such, this should be considered more carefully.
In addition we were overjoyed to have successfully made the case for the inclusion of a recommendation to decriminalise "Grow Your Own" for patients witin the report.
The APPG’s report included evidence from many written submissions and oral hearings in which UPA and a number of our patients took part, along with many other interested groups from both sides of the fence. Most significantly, one of the UK’s top consultant neurologists, Professor Mike Barnes, published his comprehensive and qualitative review of the scientific evidence for cannabis’ efficacy for many conditions which was supported by the publication of the results from APPG and United Patients Alliance recent survey of over 600 medical cannabis patients.


House of Lords
From Left: Clark French, Founder and Director UPA, Caroline Lucas MP, Baroness Molly Meacher and UPA Political Director, Jonathan Liebling

All the documents can be accessed here:

APPG Report: Accessing Medicinal Cannabis: Meeting Patient’s Needs 
Professor Mike Barnes: Cannabis: The Evidence for Medical Use 
United Patients Alliance: Medicinal Cannabis Patient Survey

Alongside this launch, #EndOurPain presented their petition:

Sign up to support #EndOurPain here: http://www.endourpain.org/


Whilst we await an official response from the UK Government which we expect will be forthcoming in the next few weeks, it has never been a better time to get involved with United Patients Alliance and help us drive the forward.
We need all the help we can muster - CLICK here if you would like to!

Jon Liebling – Political Director of United Patients Alliance


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Friday, 26 August 2016

APPG Launch - Help

Information on Launch Event

September is going to be HUGE for #CannabisisMedicine
* 100+ Peers and MPs launch campaign for cannabis as a medicine
#UPA publish Patient Survey
* Top UK Neurologist publishes "game-changing" study of evidence
* (Many More Exciting Details to come)

Facebook Posts/Tweets/etc - ALWAYS and Every one!

  • Follow us on Twitter: @upallianceuk
  • Like us on Facebook
  • Like all our FB posts and tweets
  • Comment on posts/tweets - this spreads the word (much wider)
  • Share posts/Retweet - spreads the word (much much wider)
  • Share posts in other groups you think are appropriate


  • LIKES – Likes are the throwaway gesture of social media. When you like the Page Update. Facebook assigns very little weight to it in the Newsfeed algorithm.
  • COMMENTS – When you comment on a Page Update, Facebook’s Newsfeed gives more weight to comments than likes. 10 TIMES BETTER!
  • SHARES – A share is the brass ring on Facebook. This is huge in terms of exposure, word-of-mouth recommendation, and credibility. Facebook assigns the most weight to shares. 100 TIMES BETTER!

Letter/MP Writing <- Click link for help - Old reason, right actions!

  • Write to your MP
    • BEFORE LAUNCH (Now)
      • Inform of APPG Launch/#EndOurPain #UPA Mike Barnes Medical Report
      • Highlight your own condition/situation
      • Ask for support
      • Ask for Face to Face Meeting
    • AFTER LAUNCH 
      • Highlight launch and all its information/initiatives
      • Highlight your own condition/situation
      • Request support for APPG and #EndOurPain
      • Ask for a statement regarding both/either
      • Ask for Face to Face Meeting
  • Newspapers/Magazines
    • Patient Stories (Pref Public but can be anonymous)
    • Articles (individual or groups?) for publication about the APPG Launch and #EndOurPain 
      • Be supportive, but can suggest that it does not go far enough for you/your group...because.....(GYO, Extracts, Choice/Range, etc.....)
    • "Have your say" sections of newspapers like (Metro, Sun, Mail, Telegraph, etc)
  • Published Articles
    • Share
    • Comment
    • Share your comment

On the day(s)

  • Tweet and post about events/activities 
    • With structure: Hashtags, Memes, Tags, wording
    • Night before launch News at 10 will have a special exclusive segment
    • Launch day will have many activities/media showings etc

Other Activities

  • Help organise UPA UK Tour and Grassroots showings (2 separate events...probably?)
    • Brighton, London, Bristol, Cardiff, Belfast, Birmingham, Sheffield, Manchester, Liverpool, Newcastle, Edinburgh, Glasgow + any others you would like to suggest
    • Ideas for improving event nights
    • Finding + booking suitable venues
    • Event Admin/Advertising/Leafletting/Posters
    • Recruiting in local area
    • Hosting event in local area
    • Become Regional Admin and recruit local help?
  • Meme Making
    • Ideas for good memes
    • Graphic Design for branded memes (#UPA #APPG #EndOurPain)
  • Video Shorts
    • Short video clips (with branding and subtitles) say 30s on why you choose cannabis for your condition - The more the merrier!
  • Blogging (Need content for brand new website due for launch soon)
    • Writing blogs about almost anything in relation to Cannabis as a Medicine
    • Writing opinion pieces about #UPA #EndOurPain, APPG Launch, Mike Barnes' report, UPA Patient Survey
      • No opinion will be censored but would strongly prefer "supportive" Eg: Brilliant and a great step forward, thanks, blah BUT: Better if, needs that, should be like this because.....etc....
  • Other website content:
    • Guides
      • GYO
      • Care Giver/Community Sharing
      • Extracts
      • Harm Reduction
      • Dosage guide
      • General consumption advice
      • Legal Advice
      • Any other ideas
  • Research for Soundbites from UK based sources
    • Politicians/Celebrities etc
    • Search Hansard/TheyWorkForYou

Be a Patient

  • We are always looking for patients willing to speak out publicly and be available for media interviews/events
  • I hate saying this, but it is just TRUE - The more emotional your story, the better. The more debilitating your illness, the better. Wheelchairs/Walking sticks all welcome! The more eloquent you are the better. The more presentable you are, the better - We put patients forward, it is (ALWAYS) the media who select who they want!
  • Particularly looking for:
    • Veterans
    • Medical Professionals
    • Elderly
    • Child
    • Mothers
    • Anyone who can demonstrate "live" the "rapid" impacts of cannabis consumption 
  • Mental Illnesses - Unique Opportunity - Maybe not at launch but v shortly afterwards
    • For the very first time, this campaign will have significant focus on the benefits of cannabis to mental health conditions, especially: PTSD and Anxiety
    • We need willing patients with these or related conditions also with broader/other mental health conditions who get benefit from cannabis to step forwards
There really has been nothing like this happen before. NOW is the time to make a difference. NOW is the time to be heard. NOW is the time to support Cannabis as a Medicine.


Jon Liebling – Political Director of United Patients Alliance


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Tuesday, 12 January 2016

2015 - A Year in Cannabis and Politics

2015 - A Year in Cannabis and Politics

Thank goodness for the cannabis!


United Patients Alliance
Join us/Follow Us/Like Us/Help Us.

This is what I have been doing in 2015 as Political Director of United Patients Alliance.

This was a great year of relationship building and preparation for real change. I've made a lot of friends, and one or two enemies it would seem (Prohibitionist, David Raynes has a file on me apparently!), met a large number of people who think they are important (there's a lot of those in politics!), oh, and quite a few who actually are. ;)


The first and foremost thing about 2015 I want to mention is the friendliness, compassion and support of all of the UPA family. In some ways, personally, it has not been the greatest of years, but it has been a great help to be surrounded by such lovely people. Thank you all.

UPA UK Tour Jan 2015

The year started off with the very first UPA UK Tour which saw us bring our Patients Perspective and Cannabis College events to Cambridge, Liverpool, Manchester and Birmingham through which we gained the direct support of a number of senior politicians and members of the Criminal justice system, including Tom Lloyd, of course, who now chairs the brand new National Cannabis Coalition and Julian Huppert MP both pictured here with Alex Fraser, Clark French and myself.

Cambridge Patient Perspective Event


You can read a full write up here: United Patients Alliance 2015 UK Tour

Green Party Conference 

From there it was Conference season and UPA were invited to man a stand at the Green Party Conference where we were able to talk at length with Caroline Lucas MP and Natalie Bennett who both restated their full support for what we do and promised that The Green Party would continue to help and support us when they can. We got a very warm welcome from pretty much everybody who came to, or was brought to our stand. Big thanks to Sarah Dougan and Craig Crawford for helping out throughout the event.

Green Party Conference Jon and Craig with Nathalie Bennett

Patient Delegation to Drugs Minister Lynne Featherstone MP

In February, I was part of a patient delegation to meet with the new Drugs Minister, Lynne Featherstone who took over from Norman Baker after his resignation.  
The agenda was deliberately narrow in order to just discuss the plight of medical cannabis patients in the UK and whether a process could be approved for importation of Bedrocan Products for patients. Lynne listened to all patients and was certainly very sympathetic and committed to further investigations but did caution, that she might not be in that position come the General Election. 
Unfortunately she was right, and along with many other Liberal Democrat MPs we had made friends with over the year to date, including Julian Huppert and Norman Baker, she lost her seat in the commons though don't be too upset for her, she is now a Baroness.

Home Affairs Select Committee on Drug Policy

Home Affairs Select Committee - Drug Law Reform
The next major political event was the Home Affairs Select Committee for Drug Policy attended by, not least the Bolivian Ambassador who talked about the damage that Global Drug Policy has done to his country over the years. Ironically, this meeting was on the same day as Bolivia's annual and traditional Coca-Leaf chewing day. International law actually makes every participating citizen of Bolivia a criminal on this day.

I exchanged a few pleasantries with Julian Huppert MP, Tom Lloyd, Prof. David Nutt and Baroness Meacher all of whom hold progressive, intelligent, informed and pragmatic views of drug policy in the UK. It was an honour to meet Rt Hon Keith Vaz MP with whom I don't share too many political similarities, but I have a huge respect for his tireless work in Parliament. I also had the questionable pleasure of meeting our 3 main campaign enemies in Sarah Graham, David Raynes and Neil McKeganey. It seems that along with Conservative Women Mary Brett and Kathy Gyngell, who said she did not attend at is was unfairly unbalanced, that they are the very best that prohibitionists have left to make a case. If that's true, I really don't think we have too much to worry about in that regard.

Though at first it seemed like there were a number of things missing from the programme, such as a specific focus on Medical Cannabis or a section on the financial impact of drug policy as it was focussed on the Harms of drug use. By the end, however, I was very pleased that so much was actually covered or at least touched on in the presentations and discussions.

It was noted that the audience and speakers balance was biased in favour of pro-reform however I see little other in this than merely reflecting the natural bias of the facts, experience and science of the debate as well as a true reflection of public support. It was no surprise that the few individuals who were promoting the status-quo represented the least factual arguments. I would have to say that intelligence won the day, but don't get me wrong, at the end of the day, this committee has little power if the government are not listening. Let's see how it progresses in 2016.

The General Election and Guildford Patient Perspective

Then we started moving into General Election time, which makes getting the attention of politicians particularly difficult as they focus on those things that are and always have been higher priorities to win votes. The other issue is that if 1 politician is invited to an event during this time, ALL candidates must be given the opportunity to speak.
The event that stands out during this time is the Guildford Patient Perspective where we managed to get all but one of the local candidates, not surprisingly, it was the Conservative candidate and eventual winner that did not attend, but it was great to have all of the others show their support for legal access to cannabis therapeutics. 

LibDem Candidate Kelly-Marie Blundell at our Guildford Event


Big thank you to Kelly-Marie Blundell (LibDems) for speaking and for subsequently introducing me to more senior members of the LibDem party, including both Tim Farron and Norman Lamb, whose leadership hustings I was able to attend and speak to them about United Patients Alliance and what we are campaigning for and we have the full support of both potential leaders and the entire party as they are now committed to immediate medical access whilst recommending a Royal Commission into general cannabis use and overall drug policy. I have also spoken with Norman Baker and Tom Brake, the LibDem Chief Whip. These conversations along with Tom's Lloyd and the NCC's influence have resulted in a number of new and exciting initiatives to which UPA are wanted and invited, but more on those later.

Of course, then came the General Election which I'm probably not alone in saying was a disaster. Not only did the Conservatives win with a majority but the Liberal Democrats, with whom we had made so much headway had all but vanished, from 50 seats to just 8. I would like to extend congratulations to Tim Farron for becoming Leader of the somewhat smaller Liberal Democrats. I look forward to working more with you and your party in 2016.

Thankfully I have also been communicating with a few Labour Lords and a couple of Senior Labour MPs and we were on the cusp of being invited to meet the commons front bench and be given a stand or the stage at the Labour Party Conference. Unfortunately with the changes in leadership and all their current internal problems they decided to go into a period of navel gazing but promised to re-engage fully in 2016....if they survive?

I'd like to open some doors into the SNP this year. They are all rather quiet on the subject. Not a priority. There are a few SNP MPs who spoke positively during the debate. Anyone from their constituencies that would be willing to write a letter or two - Get in Touch!

Not made too much progress with the Conservatives! Of course!
Though VolteFace has an interesting story worth thinking about: Gove and Prison Reform


National Cannabis Coalition

A potentially game changing initiative was born in 2015 – The National Cannabis Coalition. With former Chief constable, Tom Lloyd unanimously voted in as Chair and supported by board members from across most of the major campaigning groups. This creates an opportunity that I dare to say has never happened before; All (almost) activist and campaigning groups working together and supporting each other to help us all achieve our goals. Even though we might not all agree on what is the right approach, focus and priority or indeed methods – the one thing that I am sure that we can all agree on is Legal access to cannabis for all adults and as a medicine for all. Having such a collaborative organisation with a credible and respected Chair in Tom Lloyd has already caught the interest of a number of media and politicians and helped open a number of doors. More to come certainly from the NCC in 2016.

Guardian - Former Police Chief Chairs National Cannabis Coalition

Product Earth Expo

The next major event was the Product Earth Expo in June. This was a fantastic first event of its kind. It was great to see how the entire hemop and cannabis industry is coming along. The artistry, the engineering and the manufacturing, the genetics, the technology and the horticulture. It was also pretty cool to be at an event where lighters and rolling papers were so cheap too.

Those who stood up to speak did so with so much reason and passion, so much compassion and so many ideas for activism and campaigning. The message is hopeful, it is heartening and the volume is rising.

I'm really looking forward to seeing it become bigger and better in 2016. I hope more people in the UK can see, that a large and wide population of cannabis consumers and enthusiasts is a peaceful, accepting and welcoming community.

Full write up here: Product Earth Hemp Expo

Labour Leadership Hustings - Sky News


When the Labour Leadership Hustings started, what we really needed to know about the potential leaders was their position on cannabis. With a stroke of luck along with relentless posting, tweeting and letter writing, United Patients Alliance had our question asked of the leaders live on Sky during the debate. Happy to say that all of the candidates showed willingness to listen and one or two showed a drive towards change but the very best comments came from somewhat of an underdog at the time but ultimately their new leader in Jeremy Corbyn:

“I don’t think there should be criminalisation of something that is used for medicinal purposes, it is obviously beneficial to many people, particularly those suffering from MS, and I think we should be adult and grown up about this in society and decriminalise.”

I could have hugged him!


Legalise Cannabis Petition and Debate

Of course, no 2015 summary of the Legalise Cannabis Campaign would be complete without referring to the petition which raised nearly 240k signatures and was debated by MPs in Westminster Hall in October.

As with all successful petitions, the Government give their initial response at 10000 signatures: Here is my retort to the Government's initial response.



And a full write up of the actual debate here: Parliamentary Cannabis Debate

Camden Patient Perspective with Baroness Molly Meacher

In preparation for the debate we put on a Pre-Parliamentary Meeting in London with special guest speakers Baroness Molly Meacher, Tom Lloyd and Paul Birch from Help not Harm (Aka: CISTA).
This event was bursting at the seems and appeared in local and national press as well as the whole thing being recorded for the BBC. The footage taken still, unfortunately, is waiting to be aired – watch this space.

Camden Patient Perspective with Baroness Molly Meacher

David Casarett MD - Maidenhead Patient Perspective

In November and with thanks to CISTA/Help Not Harm we had the privilege of meeting David Casarett MD who has just written his new book Stoned - A Doctor's Case for Medical Marijuana. He spoke at our first Home Counties Event in Theresa May's home constituency, Maidenhead. His book can be found here.

He makes the case for how to speak to Health professionals about the benefits of cannabis and stresses the importance of highlighting risks - perhaps even exaggerate them a little. This approach is reflected in his most excellent book about his own personal journey from finding cannabis as a medicine as a joke, to writing a book and training doctors around the world about the medical benefits - It's a great read.


David Casarett - Maidenhead Patient Perspective


Patient Delegation to meet with Nick Clegg MP

UPA Patient Delegation to Meet Nick Clegg
With the assistance of Tom Lloyd and the NCC we were able to take a patient delegation to meet with Nick Clegg MP and his advisors. He is considering supporting a public awareness campaign about the medicinal benefits of cannabis and wanted to hear some powerful stories to give him some broad idea of the current problems that patients face in the UK and give him some anecdotes to use in media interviews and his regular column in the London Evening Standard. I expect to see a write up from him shortly.

Nick endeared himself to the delegation through asking intelligent questions, and his willingness to listen, sympathise and even learn about extracts, growing and various ingestion methods: We even taught him what a "dab" is!

He listened and encouraged everyone:
"This has been a really valuable meeting for me, and I have learnt a great deal about this in just the last hour. Thank you all for coming along today and for your bravery in sharing your personal stories"

Nick, Tim and the other advisers who attended ALL said that they would be in touch, so that's good news for the potential future campaign chances.
He will be meeting with a delegation from Bud Buddies in due course and we definitely have his attention. I am also pretty sure that we have a place at the discussion table for future progress.
Thanks Tom Lloyd for getting the door open and thanks to Clark French, Faye Jones, Jake Barrow, Penny Fitzlyon, Alex Fraser and Keiron Reeves for being brave, coming along and sharing your patient stories.
It is highly likely that we will be doing more of this in 2016 as deeper dives are wanted into cannabis as a medicine - If you would like to be in such a delegation in the future, please get in touch.

Political Engagement

Getting to meet and engage with MPs, politicians and other senior people is neither simple nor quick. You need a thick skin, not mind being rejected and have patience. The best way I have found is to slowly building trust and interest. If you can write to them on an unrelated subject that THEY are interested in. If you can help them by providing information they might need or insights they might be missing. Once you are found to be trustworthy, polite, professional and helpful - You can then get into the subjects you really want and you are so much more likely to get their attention and support.

There is a great, if rare, positive; Through the letters written, introductions made I've had the privilege to meet and discuss my favourite subject and UPAs goals with many cool people, important decision and policy makers and now that those contacts are made, we should be able to exploit them more in 2016. Or, at least I know I am not in their spam folder ;)

Besides those I have already mentioned I have also communicated directly with:

Alex Stevens - Former Conservative Academic Drug Policy Advisor
He can introduce me to their current one, Camilla Cavendish
Prof Les Iversen - Chair of the ACMD and Medical Cannabis Expert
Will be speaking to him further on Psychoactive Substances and Cannabis as a Medicine
Prof Val Curran - Professor of Psychopharmacology - UCL
Working closely with the ACMD and APPG for Drug Law Reform. 
Prof David NuttProfessor of Neuropsychopharmacology
Working closely with the APPG for Drug Law Reform and on the Expert Panel for Cannabis Regulation
Raphael Mechoulem - BioChemist and "Grandfather of Medical Marijuana"
He is hopefully going to introduce me to some of the marijuana researchers in Israel, but frankly, just getting an email from him made me jump for joy - what a privilege! Such a nice chap to answer my emails :)
Lord Brian Paddick - LibDem Lord 
Helping him with Psychoactive Substances Bill. He will be helping me speak to more lords members
Paul Flynn MP - Labour MP
Provided some information for the debate. Will help make inroads into senior Labour MPs
Keith Vas MP - Labour MP
Provided some information for the debate for HASC and for Psychoactive Substances Bill. Will help make inroads into senior Labour MPs
John Redwood MP - Conservative MP
Ok - pretty much totally useless - but did promise to "ask Jeremy Hunt" about rescheduling of cannabis - He did - "The government have no plans to....."


Media Engagement

United Patients Alliance got our name into the media a number of times this year, most notably in The Guardian, Indy, Mirror, London Live, LBC Radio *3, Radio Cambridgeshire and a number of local papers across the UK.

Here are some examples:

Reading Local Press - Cannabis Debate

Guardian - 420 Event

Guardian - Healthy Benefit or Deadly Threat?

Camden Local Paper - Molly Meacher




There is no magic formula for achieving success with the media; Write letters and emails, write blogs and get hits, write more letters and more letters and more letters and more emails. Comment on blogs and on articles..all of them. Write yet more letters. Call journalists. Promise them things, Deliver them. Follow up each letter with a call - In 2 words - Persistence and Passion

I would say that in order to get one letter published in one place, you have to write 20 letters to 20 places - every time! But it IS worth it, because we now have the direct contact and attention of 3 journalists working for national newspapers (Indy, Guardian, Mirror). The hope is that they will "favour" our letters and even request content from us if they are writing a relevant story. Biggest piece of advice: Don't give up, don't get disappointed, keep trying. I have to admit, it does feel good to see your letter get published.






So what about 2016?

Obviously more of the same, but there are 2 or 3 very exciting initiatives about to kick off in Quarter 1 2016:

1: LibDem Expert Group on Cannabis Regulation

Tom Lloyd is on the board of this expert group representing the interests of the NCC and affiliated groups. They will be looking into full cannabis regulation models around the world and produce recommendations for a UK model. We will all have the opportunity to have our arguments heard as this gets going between now and the end of the year.

2: All Party Parliamentary Group on Drug Law Reform (APPG) 

Co-chaired by Baroness Molly Meacher and Caroline Lucas MP, this group now have over 200 Lords and 30 MPs signed up and are looking to do a deep dive into the rescheduling of cannabis and legal medical access for patients. United Patients Alliance will be working directly with her team and I will be needing more patients, more stories and more details about your cannabis consumption. I will be publishing details on this, and asking for help very shortly. They even want to know about cooperative and home growing models! Yay!

3: Focussed (and funded) Campaign

Through Nick Clegg's office there does appear to be some enthusiasm for a funded and focussed campaign within a short frame (18-24mths). This could be focussed on medical access, or perhaps some form of decriminalisation. Something the NCC believe can be won in that time frame. Ideas welcome. In any case, once we can agree on the details, we may just get an external group of marketeers interested in funding and running it.

So that is what the Political Director of United Patients Alliance has been doing in 2015, but to make 2016 the best year ever UPA need your help: 

We need letter writers (media and MPs), bloggers, social media gurus, website admins, developers and designers, Graphic artists, video makers and editors, researchers, patient stories, idea creators, fund raisers - You name it. In fact no matter what your background, skills, capability and experience - I bet we can make use of your talents and you can be a part of making history with us.

Please get in touch ASAP if you would like to be a part of the best campaign group there is for Legal Access to Cannabis Therapeutics in the UK. 


Jon Liebling – Political Director of United Patients Alliance
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